Archiving package (a.k.a. data package):

Archiving research data:

Confidential data:

Data asset

Data package:

Directly identifying data (a.k.a direct identifiers):

NB: There isn’t really a perfect delineation between direct and indirect identifiers, but, rather, more of a sliding scale. Something may be a direct identifier because of it’s uniqueness (e.g. a unique tattoo) or based on context (e.g. the current Prime Minister of the Netherlands). It is important to be aware of any of these less commonly considered direct identifiers when you are working on de-identifying your data.

FAIR principles:

Indirectly identifiable data (a.k.a indirect identifiers):

Interoperable (meta)data:

Key file:

Logbook/laboratory notebook:

Metadata:

Personal data:

NB: Personal data do not necessarily need to be considered “sensitive” data to receive protection under the GDPR. If your data are considered personal, based on the definition above, they must be handled in accordance with the GPDR, regardless of whether or not you consider the data sensitive.

NB2: Almost all data about human subjects are considered personal data under the GDPR. The vast majority of the data collected at FGB are about human beings and should therefore be treated as personal data unless you have confirmed with an expert that the data are anonymous. This reference card on anonymity from the National Coordination Point for RDM further explains this concept.

Processed data:

Pseudonymous data:

Publishing research data:

NB1: Publishing data does not mean that the data must be open access or publicly accessible. Access to the data can be restricted and granted upon valid request.

More information on types of publishing

Open data publishing:

  • Published data are fully accessible to the public via an online repository. Anyone can view, download, and reuse the data, provided they comply with the terms of the associated license (e.g., Creative Commons).

Restricted data publishing:

  • Published data can be reused, but the access is controlled. Potential users must submit a request for access and meet specific requirements, as outlined in the reuse license, before accessing the data. While the data are not publicly accessible, metadata and descriptions of the data are available openly online.

Closed data publishing:

  • Published data are not available for reuse under any circumstances, often due to privacy concerns, ethical considerations, or intellectual property restrictions. However, metadata and descriptions of the data are available openly online.


NB2: Data underlying a published research article must be published (in addition to being archived) so that, at a minimum, the metadata can be found and reviewed by others.

Raw data:

Research data:

Research project:

Research software:

Reuse of data:

NB: The purposes for which data may be reused and the parties which may be authorized to reuse the data depends on whether the data are personal/confidential data, as well as what the research participants consented to with regards to data reuse. How the data are published will also impact how reuse can and cannot be carried out. The FGB data stewards and privacy champions can assist with determining if data may be reused, as well as how to develop your consent forms to ask for consent to reuse from your participants.